Two Transplants Strong

January 25, 2021:

“Every transplant is a different journey,” Deborah Labud said. “Both of mine have been totally different journeys. I have different issues with my second transplant, but my breathing is awesome.”

Deborah and her granddaughter at the Transplant Games of America.

While in her early 30s, Deborah suddenly began experiencing breathing troubles. After multiple doctors’ visits and misdiagnoses, at 36 years old, it was determined she had Alpha1 antitrypsin deficiency, a genetic lung and liver condition.

Beginning in 1995, Deborah was put onto oxygen 24 hours per day, seven days per week. Two years later, her lung capacity declined to just 17 percent. She was listed to await a lung transplant.

While she waited, Deborah was inspired by another transplant recipient to make a bucket list. She created goals of traveling more, competing in various athletic events and spreading the word about the importance of organ donation.

She waited for four years, four months and 22 days, when she received her life-saving gift. On November 22, 2001, Thanksgiving Day, Deborah received a lung transplant at UF Health Shands Hospital in Gainesville, Florida.

Deborah and her grandchildren being interviewed by local media at a biking event.

Deborah’s lung transplant allowed her to accomplish many feats. Seven months post-transplant, she completed a 12-mile bicycle ride. Over the years, she attended seven Transplant Games of America, and she finished two half-marathons. She even participated in five, three-day-long bicycle rides around Cape Cod, Massachusetts. She visited Barcelona and Hawaii. Another milestone Deborah cherishes was meeting her donor’s mother.

In 2002, Deborah began volunteering with LifeQuest Organ Recovery Services, sharing her story to educate others about organ donation. In January 2005, while helping LifeQuest at a race benefitting blood donation, Deborah was encouraged to apply to work for LifeSouth Community Blood Centers, the local blood supplier.

Deborah became a phlebotomist, then a blood donor recruiter, a role she would fill for 14 years serving the Ocala and Gainesville communities.

Deborah visiting with one of the doctors who treated her at UF Health Shands Hospital.

In 2017, after many years of great health, Deborah started experiencing lung problems again, and she was hospitalized following a trip to Chicago. Her right lung was expanding, impacting her transplant.

In September 2018, she was listed for a second transplant, this time, for her native lung. She received her transplant three months later, on November 28, 2018, once again around Thanksgiving.

Deborah also became a recipient of her work with LifeSouth. She used 20 units of whole blood, 12 units of platelets and three units of plasma during her surgery.

She is continually grateful for her Gifts of Life, and the life she is able to experience with her three children, seven grandchildren and six great-grandchildren.

“Organ donors are heroes,” Deborah said. “They’re definitely generous to sign up and be donors because they can save so many lives. They give others opportunities to watch loved ones grow, have kids, graduate, get married. It’s amazing what can be accomplished from one donor’s gift.”

…….

Click here to read about Deborah’s chance meeting and 50-year friendship with transplant recipient Karen Rodgers.

Fourth Quarter: LifeQuest Ambassadors of the Month

Throughout 2020, LifeQuest Organ Recovery Services has recognized Ambassadors of the Month to bring more attention to those who generously volunteer much of their time to organ donation outreach. In this blog, we showcase our three ambassadors for the fourth quarter and ask each of them questions related to their time volunteering.

 

October Ambassador of the Month:  Shechinah Butler

1. What caused you to become an ambassador?

“I am becoming more comfortable to share my story as a way to inspire others. Being an African American, it’s not a topic thoroughly discussed, and I can possibly be the person to give a sense of comfort that it’s okay to talk about.”

2. Why do you find being an ambassador important?

“Being an ambassador allows me to connect with others who share the same experience, as well as those who are beginning their own journey.”

3. What do you enjoy about volunteering?

“I have always enjoyed volunteering and serving others in the community in different aspects of life.“

4. Why would you encourage others to become LifeQuest ambassadors?

“Being a LifeQuest ambassador allows us to be living testimony to others. When you can tell your story, it gives them a chance to see that things are possible, and that is with any situation.”

5. Why do you encourage others to register as organ donors?

“I always inform others that I am not trying to make them become an organ donor, but I always encourage them to research the option of becoming one. Being able to help someone is a blessing not only to the person you are helping, but to you as well.”

 

November Ambassador of the Month:  Rosetta Hylton-Anderson

1. What caused you to become an ambassador?

“Working as a nurse, I came in contact with people who lost their lives because they needed an organ transplant. As an African American, I knew organ donation wasn’t popular with Blacks. I became interested in promoting the truth.”

Rosetta helped organize National Minority Donor Awareness Month in Quincy.

2. Why do you find being an ambassador important?

“Once, a young man was involved in a motorcycle accident in the Turks and Caicos. He was flown to the hospital where I worked in Coral Gables. I met his parents and asked them if they would donate his organs. They said, yes. I later flew to the islands where his parents met the man who received their son’s organs. During the reunion, the donor’s little girl told the recipient that they would be friends forever because he had her daddy’s organs.”

3. What do you enjoy about volunteering?

“My favorite part is when I am able to see a donor family and a recipient family come together. When families meet, they usually become close.”

4. Why would you encourage others to become LifeQuest ambassadors?

“Because it is the right thing to do. I would encourage others to volunteer because, if you have nothing else that makes you feel great about your life, doing this gives you something to be proud of.  Being able to help save lives is big and something to feel good about.”

5. Why do you encourage others to register as organ donors?

“It takes you to the core of your spirituality. If you are a Christian and you know He arose to give you life, why would you not give life to someone else if given the chance?  It doesn’t matter if you are Baptist, Catholic or whatever. Anyone can feel good about doing that. It’s just real. I don’t care who you are. Being an organ donor takes you right where you need to be.”

 

December Ambassador of the Month:  Katie Walton

Katie sharing her donation story at Tribute to Life.

1. What caused you to become an ambassador?

“As a multi-organ transplant recipient, I became acutely aware of the shortage of available organs for transplantation.  Having a deep sense of gratitude for my Gift of Life, I consider it my part to give back and benefit the lives of others.  Volunteering as an ambassador is one of the ways I thank and honor my donor and donor family and support the message of Donate Life, saving lives through organ and tissue donation.”

2. Why do you find being an ambassador important?

“Any and all opportunities to thank my donor and to increase organ, eye and tissue donation are important.  The need for healthy organs is great and quantity is few. Perhaps the greatest benefit is the reason we all do it in the first place; it makes a difference. As a recipient, I find value in that people can ‘see’ a healthy active person, alive and standing before them ONLY through the generosity of an organ donor, usually a complete stranger, and by the grace of God. It’s reassuring to see, proof positive, that you can make a difference.”

3. What do you enjoy about volunteering?

“First, sharing the message of Donate Life and sharing my journey, hoping that others might realize the difference they can make through organ, eye and tissue donation.  Second, meeting and interacting with the people.  Not only reaching out to motivate others, but meeting fellow recipients with whom I enjoy teaming up with to volunteer, the donor family members, and professionals I have met in the field of transplantation.  I have not only gained new friendships but a wealth of knowledge in the process.”

4. Why would you encourage others to become LifeQuest ambassadors?

“Volunteering as a LIfeQuest Ambassador is a powerful way to make a difference, help others, and in this case, save lives. Simply put, as an ambassador you impact not only your life but the lives of those you volunteer with and those whose lives benefit from your efforts.”

5. Why do you encourage others to register as organ donors?

“Organ donation saves and enhances lives.  It has the pebble dropped in a brook effect, the ripples radiate far. Donation is not just about what it can do for an individual but for a family and the community.  It is a humanitarian effort, an act of kindness, and the last best gift a person can give.”

Read more about Katie below.

Silent Celebration

They say a picture is worth a thousand words. The same can be said of a Donate Life flag waving in the wind. This silent visual illustrates a bold yet heartfelt statement about the legacy of an organ donor and the significance of sharing the Gift of Life.

The Donate Life flag at Capital Regional Medical Center.

Raising the Donate Life flag is just one way LifeQuest recognizes our donor families for their generosity and sacrifice. The flag is prominent at private memorials, Honor Walks and public celebrations, too. It represents our continuing effort to raise awareness about organ, eye and tissue donation.

Donate Life flags serve as a symbol of unity, trust, and hope, while honoring those touched by donation and transplantation. The flag celebrates the hundreds of thousands of donors and recipients whose lives have been impacted.

Nearly 109,000 Americans — more than 5,000 of them in Florida — are on the transplant waiting list for life-saving organs. There were 40,000 organ transplants performed in the United States in 2019.

Donor families share a special reverence of the Donate Life flag and the ideals it represents. Its simple design features the national Donate Life logo. This call to action is highlighted in blue and green, representative of the sky and earth, and it includes a swirl signifying the circle of life.

Here the flag symbolizes donor education at Leon County EMS.

If you have ever driven by a local hospital and seen the Donate Life flag on their flagpole, you probably wondered what it means. Our dedicated hospital partners and their staff are essential participants in honoring those who say ‘yes’ to organ donation.

Many partnering hospitals fly a Donate Life flag each time a donation occurs at one of their centers. The flag may fly for a day, sometimes for a week, revealing to the community and hospital staff that someone has just shared life, the greatest gift of all.  After the flag has been flown, some hospitals present it to the donor family to keep. It is a meaningful reminder of the service and sacrifice needed to make the Gift of Life possible.

In addition to flying the Donate Life flag after a donation occurs, some hospitals and transplant centers, as well as recovery agencies, fly the Donate Life flag during National Donate Life Month in April. It is an easy way to start the conversation about donation and increase visibility of the life-saving power one person can have by registering with the Florida organ donor registry.

A Silent Celebration at Fort Walton Beach Medical Center.

Some hospitals partner with LifeQuest to host annual flag-raising ceremonies. Donor families, friends and members of the community are invited to attend. A hospital’s chaplain or a faith leader may share words of encouragement. Staff from the hospital and from LifeQuest, and donor family members and recipients also are invited to say a few words to honor the legacy of donors and the strength of donor families. The ceremonies offer families comfort and the opportunity to visit with healthcare teams who cared for their loved ones during the donation process.

At Ascension Sacred Heart Pensacola, a folded flag is placed in the hands of the donor’s next-of-kin.

The Donate Life flag is also prominent during the Honor Walk, a reverent ritual designed to show respect for patients at the end of life who are donating organs to others. The donor’s hospital bed is sometimes blanketed with a Donate Life flag on its final journey from the intensive care unit (ICU) to the operating room (OR). The flag is folded and then placed in the hands of the donor’s next-of-kin. The cherished item can be passed down to children and grandchildren. A Donate Life flag may also be provided to drape the casket or accompany the urn of a deceased donor.

Transplants give hope to people with organ failure and improve the lives of countless patients. LifeQuest covers 36 counties in northern Florida, from Jacksonville to the east, to Ocala in the south, to Pensacola in the west.  The donation service area supports more than four million people and consists of more than 70 partner hospitals.

LifeQuest appreciates our partner hospitals for joining in our flag program, which serves as a final tribute to an individual life the family has lost. Organ donation would not be possible without their help.

 

A Long-Lasting Bond

December 2, 2020:

Friendships lasting nearly 50 years are incredibly rare and special.

In 1972, 17-year-old Deborah Labud’s brother sent her back home from Oklahoma to Florida on a bus, but she missed her connection in Alabama. She caught a ride with a truck driver to her friend’s house in Gainesville, Florida. That’s where she met Karen Rodgers, then 18 years old.

“We’ve been partners in crime ever since,” Karen said.

In the initial years of their friendship, Karen gave birth to her daughter, Angi. Deborah helped babysit. Deborah would later become pregnant with her first child, Amber, and she went into labor while at the movies with Karen. The two even ended up living in the same neighborhood, and their fathers knew one another through the Loyal Order of Moose, a fraternal service organization.

Deborah moved to Virginia after getting married, and they lost contact. Much happened during their time apart, though.

Deborah in the hospital.

While in Virginia, Deborah suddenly began experiencing breathing troubles. After multiple doctors’ visits and misdiagnoses, at 36 years old, she was diagnosed with Alpha-1 antitrypsin deficiency, a genetic lung and liver condition. In 1995, Deborah was put on oxygen 24 hours per day, seven days per week. She was later listed to wait for a lung transplant.

In Gainesville, Karen Rodgers had an emergency cesarean section to deliver her son in 1977. She went into surgical shock, requiring blood transfusions to survive. About 15 years later, Karen became sick. She was diagnosed with hepatitis non-A, non-B (now called hepatitis C). An ultrasound revealed her liver had shriveled and was not functioning. She urgently needed a liver transplant, which she received at UF Health Shands Hospital on November 17, 1996.

Deborah moved back to Gainesville. She stopped by Karen’s house to check on her, and both were in wheelchairs. Karen recently received her liver transplant, and Deborah was in need of a lung transplant. Their friendship picked up where it left off, but with a new profound connection. Deborah received her lung transplant at UF Health Shands Hospital on November 22, 2001.

“It’s really amazing to have a long-time friend with a transplant,” Deborah said. “We have so much in common. We’re more like family than friends. We travel, share motel rooms, talk tons. We know everything about one another. We share a very special bond.”

A friendly trip to South Carolina.

Road trips are their preferred way of travel, and Karen drives the entire way. Deborah and Karen have driven to Louisville, Pittsburg, Grand Rapids, Houston and Cleveland for the transplant games. They also flew to Madison, Wisconsin, to participate the Transplant Games of America. She participated in 2002 and 2004, then Karen became involved in 2006. The duo refers to themselves as “Thelma and Louise: on the road again,” having travelled together to six of the games. They compete in darts and bowling.and visit Karen’s family.

“Deb knows what we go through,” Karen said. “We have the same phobias about people, places, going around certain things. We look out for each other.”

Deborah and Karen volunteer together, too, and both are trained as LifeQuest Organ Recovery Services Ambassadors.

Karen and Deborah at a LifeQuest event.

“When we volunteer together, we have a great time,” Deborah said. “We always explain it like, ‘I’m the lungs. She’s the liver.’ Then if we have a heart recipient or another recipient with us, we include them, too. People are always impressed with our stories.”

The duo hopes that through learning their journeys, more people will see the life-saving impact organ donation has. Karen’s liver has lasted more than 24 years, and Deborah received a second lung transplant, this time for her native lung, on November 28, 2018, at UF Health Shands Hospital.

“You never know if you or your family member will need a transplant,” Karen said. “Don’t take your organs with you when you pass because we need them here. Too many people die waiting for transplants.”

Get Your Donate Life Florida License Plate

October 16, 2020:

Legislation enacted in mid-September gave Donate Life Florida, the non-profit coalition of Florida’s organ, eye and tissue donor programs that runs the state’s donor registry, the green light to produce a Donate Life Florida license plate. First, however, they must presell 3,000 vouchers to Florida motor vehicle owners before the plate will go into production.

Donate Life Florida must reach a presale goal of 3,000 license plates.

Donate Life Florida, or DLF, was founded in 1997 and obtained a state contract to create and manage the donor registry in 2009. At the time, there were fewer than 5 million names on the registry. Today the registry enrollment exceeds 11 million!

In addition to running the registry, DLF is committed to educating Floridians on the importance of lifesaving and life-enhancing donation. Its members include all of the state-licensed donor programs, and it receives zero taxpayer dollars to operate. Zero!  It is funded entirely on member dues and voluntary contributions, including the “dollar donations” that Floridians make when obtaining a driver license or registering their vehicles.

The funds raised through the sale of this new Donate Life Florida license plate will help DLF manage the registry and continue to provide donor education across the state.

The voucher presell process will be a challenge, and DLF is enlisting the support of all of the donor programs and transplant centers, their staff and volunteers, and all those who support lifesaving donation to join in the effort.

Here are a few things to know about the new license plate:

  • The cost of the plate itself will be $25, all of which goes to Donate Life Florida to manage the donor registry and increase awareness for the importance of lifesaving donation, plus $8 in state and branch fees. The total cost of the plate will be $33.
  • A voucher to get the plate can be purchased starting October 16 for $33. Buyers will get a certificate to redeem for the actual plate once Donate Life Florida has sold 3,000 vouchers. Donate Life Florida has 24 months to do that but hopes to achieve that goal much sooner.
  • Vouchers can only be purchased at the tax collectors’ offices and state DMV offices at this time. Many offices are taking customers via appointment only, so please check with the offices in your county for the rules. Here is link to all of the county offices: FLHSMV.gov/locations.
  • Vouchers are available for motor vehicles only, no motorcycles or trailers, and commercial vehicles weighing less than 26,001 pounds.

Here are a few things to know about lifesaving donation:

  • One organ donor can save the lives of up to eight people.
  • One tissue donor can save or enhance the lives of up to 75 people.
  • There are more than 109,000 people on the national transplant waiting list. Of them, more than 5,200 are listed at transplant centers in Florida.
  • Thanks to the generosity and selflessness of donors and their families, more than 39,000 patients received lifesaving transplants last year. Of them, 2,700 were transplanted in Florida.

License plate proceeds will be used help manage the organ donor registry and provide public education.

Feel free to share this message with your friends, family and other individuals who share your passion for lifesaving organ, tissue and eye donation and encourage them to help get the Donate Life Florida license plate on the road. You can share this message on your own social media platforms, blogs, podcasts, and so on. You also can obtain graphics for various platforms (Facebook, Instagram, Twitter, and YouTube) on Donate Life Florida’s website (www.DonateLifeFlorida.org). DLF will post regular campaign updates on its website and social media platforms to keep the community informed on how close they are to reaching the goal of 3,000 vouchers sold.

Follow Donate Life Florida on social media!

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Third Quarter Feature: LifeQuest Ambassadors of the Month

Throughout 2020, LifeQuest Organ Recovery Services has recognized Ambassadors of the Month to bring more attention to those who generously volunteer much of their time to organ donation outreach. In this blog, we showcase our three ambassadors for the third quarter and ask each of them questions related to their time volunteering.

 

July Ambassador of the Month: Demarcus Graham

1.)  What caused you to become an ambassador?

Demarcus Graham recognizes the power and influence of sharing his donor story.

I wanted an opportunity to try and help others receive a transplant, too.

2.)  Why do you find being an ambassador important?

I think being an ambassador is important because my story is no different than others in need of organ transplants, but while waiting, I was willing to share my story. I hope to help others receive transplants by sharing the need.

3.)  Why would you encourage others to become LifeQuest Ambassadors?

I would and will continue to encourage anyone to become an ambassador because your story could encourage someone to become a living donor or register as an organ donor. Helping others is the biggest reward one can receive.

4.)  Why do you encourage others to register as organ donors?

We simply don’t know what tomorrow brings for any of us. If, God forbid, tragedy befalls someone, several lives can be saved through donation.

 

August Ambassador of the Month: Betty Morales

1.)What caused you to become an ambassador?

Betty Morales feels like part of the solution when volunteering.

 I have been a volunteer coordinator with Big Bend Hospice for 19 years and have seen the impact and the importance of supporting an organization. I believe everyone should find the time and make the effort to volunteer for what they believe in. If education or children are important to you then you should volunteer for a school or organization that helps children. If you worry about homeless or hungry then help in shelters or food banks. We all have a responsibility to help each other. I learned about LifeQuest when my husband, Robert, and I were at Mayo Clinic in Jacksonville for his series of testing for a kidney transplant.  I looked them up and registered to become a volunteer.  I just want to do my part in helping to help.

2.)  Why do you find being an ambassador important?

I really enjoy working with Kim Gilmore, public education coordinator at LifeQuest.  She is so knowledgeable and she is passionate about teaching people about the importance of being an organ donor.  In her presentation, she discusses the number of people waiting for transplants, the average time they wait and how many people die waiting.  The statistics alone are heartbreaking but having an opportunity to share my story, gives a face and a human connection to the importance of organ donation. 

3.) What do you enjoy about volunteering?

When I applied to become a volunteer, I thought I was going to help with projects, health fairs or special events.  In the middle of my training, Kim tells me she often has volunteers accompany her on presentations and share their personal stories. My immediate reaction was I can’t do that. I will get very emotional and I don’t even have a happy ending yet. Kim reassured me saying, “You don’t have to, but people need to understand what it is like when life is so uncertain, what it is like to wait and worry.” I was still unsure but decided I would try, and every single time I have had an opportunity to share our story, someone has encouraged me or lifted my spirits. I have even had high school teenagers offer to give me a hug or tell me they are going to pray for me and that it is going to be ok. It gives me hope.

4.)  Why would you encourage others to become LifeQuest Ambassadors?

When we experience tragedies and difficult times and uncertainties, it is easy to feel very alone in our fear and grief. Volunteering with LifeQuest helps me to feel less alone. It gives me a connection to people who know what they are doing and a connection to other people who have been touched by organ donation. It also gives me an opportunity to share with the community about the importance of becoming organ donors and answer questions. There are so many misconceptions. Although we are still on the waiting list, I feel like maybe I am a little part of the solution. I would encourage others to volunteer because people need to hear our stories, and it is very uplifting to find that even strangers care and want to help when you share.

5.)  Why do you encourage people to register as organ donors?

I think many people do not understand organ donation and we need more people to share their stories.  I have worked for hospice for a long time. I know how difficult it is to lose someone you love. Organ donation gives people a chance at life – a new life.  I also try to share the importance of advance directives and the important discussions families need to have. No one ever wants to be in a position to have to make those decisions for a loved one, but they might be able to be the answer to another family’s prayers.  

 I am very grateful for the support I have from LifeQuest and hope to continue to share our story, especially after my husband’s transplant one day.

 

September Ambassador of the Month: Cliff Gionet

1.) What caused you to become an ambassador?

Cliff Gionet volunteers to share the memory of his son, Jason.

In 2009 my son died.  He had registered as a tissue and organ donor, and while he could not donate organs, his tissue, bones, skin and corneas were donated. Several years after Jason died, I had the opportunity to attend a procurement procedure.  That was a life-altering event.  I witnessed a miracle as the organs were procured that would have been wasted had the donor not registered. I then had the incredible opportunity to attend a second procurement operation and witness the heart transplant. Lives are saved by donation, and the Gift of Life is perhaps the greatest gift of all.

2.)  Why do you find being an ambassador important?

People die needlessly because more people do not register. If I can register one person who becomes a donor, they might have the chance to benefit up to 75 recipients. There are millions of potential donors just waiting for someone to convince them that they need to register. I am one of the many people trying to do just that.  

3.)  What do you enjoy about volunteering?

I have met thousands of people from all walks of life. I have met many recipients, donor family members, and incredible ambassadors. We are all connected in the quest to prevent needless deaths and suffering due to the lack of available organs. You feel like you are part of a team of miracle workers.  

4.)  Have you developed any new friendships through our Donate Life community?

 Few of us ever have the chance to save lives. Volunteering as a LifeQuest Ambassador gives you the chance to perhaps save many, many lives. There are lots of opportunities and your schedule, interests and abilities can be accommodated. It is incredibly rewarding to register a potential donor. It is a wonderful feeling knowing that someday your work may save many, many lives.

5.)  Why do you encourage people to register as organ donors?

 I received a letter from a recipient of some of my son’s spine.  The recipient could walk after receiving the transplant, and he could then care for his wife who was confined to a wheelchair with MS. I met a man who cried while holding my hand because he and his children did not choose to donate his late wife’s organs. I tell the story of the living donor who gave a kidney to a friend’s son. I tell people of the hug I received from the mother of a five-month-old baby who received a heart transplant because some other child’s parents decided to donate organs.  The process is critically important.  It is powerful to be involved in the process.  There may be no more important work to be done then to try and help save the lives of the thousands of people waiting for organs.

Walk of Love

September 11, 2020:

As a woman of faith, Cristy Sutton had come to appreciate the life-saving miracle of organ transplantation. Four years ago, lying flat on her back in a hospital bed, she came face-to-face with the emotional uncertainty that she may need a liver resection to survive.

The pause brought about by Sutton’s stay in an Atlanta transplant center gave her time to reflect. On each side of her were patients waiting to receive organ transplants.

Cristy moments before her hepatectomy.

“I couldn’t help but think about the fact that these people were likely going home with their families,” said Sutton, a chaplain at Ascension Sacred Heart Hospital Pensacola. “But there were others who weren’t going home with their loved ones; they were leaving empty-handed.”

It was a watershed moment for Sutton who was inspired to change how donor families experience the final moments of their loved ones’ lives. She influenced personal touches to the hospital’s traditional Honor Walk that serves as a final memorial to the donor.

Called the Walk of Love, it is a sacred ritual designed to show respect for patients at the end of life who are donating organs to others. Doctors, nurses and other hospital staff, and often friends of the donor and donor family line the hallway to silently pay their respect.

So far, Walk of Love has been embraced at three additional Ascension hospitals across the Florida Panhandle with a ripple effect, including facilities in Gulf, Bay and Walton counties.

“It is actually in the process of spreading across Florida through Ascension hospitals,” Sutton said. “All of this is for the donor; we’re here to honor them because we want them to know we care about them as a family and their loved one giving the gift of life.”

Donor families walk behind their loved ones’ hospital bed on its final journey from the intensive care unit (ICU) to the operating room (OR). It was here that Sutton observed grieving families grasping for something, an anchor of sorts, when saying their final goodbye.

“The families of the organ donors, their hands, in a sense, were empty,” she said. Why not give them something tangible and meaningful to hold onto, she thought.

The Donate Life flag was the obvious choice. The donor is blanketed with a Donate Life flag as they are escorted to their final destination. The flag is then folded, and a chaplain places it in the hands of the donor’s next-of-kin.

The team of chaplains at Ascension Sacred Heart Pensacola

“Their faces light up when they get that flag,” Sutton said. “For them to be able to touch something that was touching their loved one and take it home with them seems to be the biggest blessing for the family.”

Jes Morgan, chaplain coordinator at Ascension Sacred Heart Pensacola and a retired military chief, helped come up with a unique method of folding the Donate Life flag. The step-by-step process, while similar to American flag-folding procedures, varies widely and intentionally, and is shared with donor families.

“We didn’t want to disgrace the American flag in any way,” Sutton said. “We wanted the Donate Life green and blue to show up on the outside of the fold and to be certain the flag would not come apart while folded.”

Shy by nature, Sutton said it took months to work up the nerve to pitch her idea for Walk of Love, and she said it involves constant collaboration and communication to keep it going, not to mention compassion.

“It is most definitely a team effort,” she said. “Our chaplains have kind of pioneered it, supported me in it. I work with the best team of chaplains, I feel like, in the world.”

Despite wishing there was more she could do, Sutton said it was a blessing to work toward such a gratifying goal with her peers.

“Sadly, we can’t give them the gift of taking their loved one home,” she said.

Sutton was fortunate. In 2016, she was diagnosed with an ovarian tumor that was safely removed. Less than a year later, doctors found three tumors on her liver. She had a partial hepatectomy to remove a portion of her liver.

A note written by a donor family

At the time of her hospitalization, Sutton had seen a video of an Honor Walk but had not been a participant. Since then, she has been privileged to take part in and facilitate several Walks of Love at Ascension Sacred Heart Pensacola. Each one has been as unique as the donor who was being esteemed.

On one occasion, the family wanted Sutton to hold the walk, but they didn’t want to be present.

“We got to experience it as a staff.  It went amazingly well in honoring the donor.”

Recently, a Walk of Love was held to honor a donor who had planned to join the military.

“The folded flag was very symbolic for that family because it gave them something to hold onto that was part of the donor’s dreams,” Sutton said.

…………….

Cristy was also featured in Honoring Organ Donors

Generosity that Lives On

August 20, 2020:

Kimberly Morales was the youngest of four siblings, with 15 years between herself and the oldest. She was sassy, determined and as her mother described, “spoiled by all.”

Kimberly had an active childhood. She played soccer for a couple seasons. She enjoyed musical theater and acrobatics. Her true love, though, was dance.

Kimberly loved to dance.

“When she started dancing, she took two classes,” Kimberly’s mother, Sherry, said. “At the time of her death, she was taking 11 classes. She took classes in every style of dance, but Irish dance was her favorite. She liked the movement of dancing with her feet.”

On January 20, 2019, Kimberly was involved in an ATV accident while visiting her best friend’s house in Williston, Florida. Three days later, she was declared brain dead. Kimberly was 9 years old.

“I spoke to Kimberly 30 minutes before her accident,” Sherry said. “She begged me to spend the night at her best friend’s house, and she thanked me for letting her. We always said ‘I love you’ before hanging up the phone. This time, she said to ‘tell everyone I love them.’ Thirty minutes later, an officer called me telling me they’re trying to revive my daughter. You never know when something so precious can be taken from you.”

Though the Morales family experienced an enormous tragedy, they knew what they wanted Kimberly’s legacy to be: a hero who generously gave the Gift of Life.

“Kimberly had a huge heart,” Sherry said. “She gave to everyone. She gave to other kids who didn’t have as many toys. She bought ice cream for kids at school. Kimberly gave, gave, gave. And her heart saved a little girl’s life.”

On January 27, Kimberly saved four lives as an organ donor. She donated both her kidneys, her liver and her heart. She would also donate tissue and her cornea, enhancing the lives of dozens more people.

Kimberly and her mother, Sherry.

“The time spent in the hospital waiting for her organs to be matched was good for me because I got to spend time with her – my baby,” Sherry said.

Since Kimberly’s passing, her family created the Kimberly Morales Memorial Foundation to help church organizations, provide scholarships for continuing education, share the joy of dance and further educate about the importance of organ donation.

“Why be selfish and take your organs with you when they can help someone?” Sherry said. “What greater joy can I have than to know others can do things Kimberly could do? They can run, jump, dance. Kimberly had so much energy and was so full of life. What greater joy can I have than my daughter giving life?”

A Heartfelt Bond

August 13, 2020:

Heart recipient Tyrone Brisby and his wife, Demetris (Dee), strive to meet with his donor family each August – the month of Kyle’s birthday, but also the month he passed away and became an organ donor.

“The first time we met my donor family was very emotional,” Tyrone said. “I didn’t know what to expect. No one can prepare for the first meeting. We just had to go with it. There was a bond created at the first meeting, and they became extended family.”

Tyrone Brisby holds a picture of Kyle Rodger, who saved his life.

Tyrone was diagnosed with congestive heart failure at 49 years old. About 10 years prior, he had experienced a small heart attack and been diagnosed with high blood pressure.

After roughly eight months of testing, Tyrone was listed at Jacksonville’s Mayo Clinic to wait for a heart transplant. He received his heart five weeks later on August 19, 2014.

In Tennessee, Kyle Rodger, 14, had been involved in a car accident. Kyle’s parents, Jeff and Tina, honored his wishes to be an organ donor, and he saved five lives.

“Kyle had the conversation so many people should have stating that if something happened to him, he wanted to be a donor and save lives,” Tyrone said.

Tyrone, Dee, Jeff and Tina have met one another multiple times, alternating meeting locations each year. They have visited one another in Tennessee and Jacksonville, as well as Vermont, where Kyle was born and laid to rest. Kyle’s parents have also met his liver recipient.

Since receiving the heart transplant, Tyrone and Dee have become dedicated ambassadors for LifeQuest Organ Recovery Services, volunteering hundreds of hours of their time educating the public about the life-saving importance of organ donation. They have shared their story with high schools, colleges, churches and health fairs.

Neither Tyrone nor Dee had been registered as organ donors prior to Tyrone receiving his transplant. They had never been educated on the cause, so they hope to better inform others about the impact donation has.

Memories of Kyle Rodger.

“Once he got sick and someone saved his life, then I understood it,” Dee said. “I can do that for someone else.”

Now, Tyrone and Dee, along with their four children, are registered as organ donors, and their grandson signed up when he was 14.

“I want to keep my donor’s legacy alive and create awareness for the cause,” Tyrone said. “There’s a shortage of organ donors. If something happens, and you can save someone else’s life – why not?”

A Lasting Bond Between Nurses

August 6, 2020:

Brenda Darling and Daryl Mullee worked together as nurses at Gainesville’s Alachua General Hospital. Brenda worked in the recovery room, and Daryl worked in the operating room.

Their sons, Brandon and Charles, were in the same first grade class at J.J. Finley Elementary School, and the two quickly became best friends. They would both graduate from Gainesville High School (GHS).

While Brenda and Daryl had a lot in common, they would later share much more.

Brenda’s oldest son, Alton, was substitute teaching at GHS, when he ran into Daryl, who was working as the school’s clinic nurse. Daryl asked how his mother was doing, and he told her she was not doing well. She was in need of a kidney transplant.

“As clear as I state it now, I heard God say, ‘You can help her,’” Daryl said. “I called Brenda and said, ‘I heard you need a kidney. Want one of mine?’”

Through testing at UF Health Shands Hospital, the two found out they were a perfect match. The surgery was scheduled for December 2010, but the transplant would be postponed.

“For some reason, I believe God told me to cancel everything,” Brenda said. “In retrospect, I know why. My kidneys rebounded and lasted two more years.”

Brenda at the Gate River Run in Jacksonville.

Brenda continued working. She ran marathon relays and competed in Jacksonville’s well-known Gate River Run. It was shortly after the March 2012 race when she began feeling worse. She retired that May, and her transplant was scheduled for June 12.

“It was part of God’s divine plan for me to wait,” Brenda said. “My then mother-in-law and my best friend were retired and had more availability to be caregivers when I needed them.”

The surgery went smoothly, and Daryl returned to work about six weeks later.

Brenda began having abdominal pain in August. She lost weight, and the cause remained unknown. In October, she had a high fever and would have an infection every four to six weeks, nearly continually, with the exception of one year infection-free.

Brenda began visiting Jacksonville’s Mayo Clinic, where she was listed in December 2018 to await her second kidney transplant. She’s been doing home dialysis since April 2018, completing it nightly.

Brenda is searching for a living donor through a “Share Your Spare” campaign on Facebook, and one of her sons is being evaluated for paired donation.

Brenda remains active while she waits. She enjoys gardening, movies, watching football, church and nutrition. She implemented a whole-food plant-based diet into her lifestyle, which she read has positive impacts on kidney health. Alton coaches the Buchholz High School Girls Basketball team, and Brenda enjoys going to the games to cheer the team on.

Brenda enjoys a day of fishing.

In early 2020, Brenda became trained as an ambassador for LifeQuest Organ Recovery Services, volunteering her time to educate the public about the life-saving importance of organ donation. She enjoys being able to share her story to inspire others to consider registering as organ donors.

“Organ donation saves lives,” Brenda said. “The myths have been passed from generation to generation. The truth has to be known, and that happens through education. Education is the only thing that will turn the tide – especially within the black community. Education is the key to making a difference.”

Daryl is also planning to become an ambassador, encouraging the community to consider living donation, too.

“I most definitely encourage people to be living donors,” Daryl said. “It’s a way of prolonging someone’s life. If you’re a perfect match, you almost have an obligation to do it. There’s such a need for kidney transplants, and it saves lives.”

Shiara’s Journey

August 1, 2020:

“Life is back to normal,” Shiara Veltman said. “I get to jump in the pool with no cares. I get to swim in the river with my friends. Taking medications is an easy compromise for having a life again.”

Shiara lived a healthy childhood until seventh grade, when she fell ill following a trip to Cedar Key, Florida, with friends. She was treated for bronchitis and prescribed antibiotics, but soon she became very swollen.

Initially, it was thought she was allergic to the medicine, but after further testing and hospitalization, she was diagnosed with nephrotic syndrome and focal segmental glomerulosclerosis (FSGS), both substantially impacting her kidneys.

Shiara’s diet was altered. She grew up eating canned food often – one of her favorites being ravioli – but she had to switch to healthier eating habits containing less sodium. When she was younger, she hated taking pills, but she learned to adjust. She had episodes of appearing swollen.

Today Shiara is happy and healthy.

“Other kids at school didn’t understand why I was swollen, and they made fun of me a lot for it,” Shiara said.

When Shiara was 15, her doctor called on Halloween instructing her it was time to begin dialysis. She missed most of her sophomore year and half of her junior year of high school while awaiting a kidney transplant, but thanks to her teachers and her mother, she was able to keep up with her schoolwork.

“Being on dialysis is terrible,” Shiara said. “While I was waiting for my transplant, I wasn’t hopeful. I thought about statistics – that I would be waiting four or five years for a kidney since so many are needed.”

Shiara received her transplant on November 11, 2018, after a year of dialysis. She was not without complications, as FSGS is recurring, and impacted her new kidney, too.

Shiara began plasmapheresis treatments at UF Health Shands Hospital, making the nearly 1.5-hour journey from Inverness to Gainesville twice a week for a few months, before the treatment frequency was lessened to weekly, then every other week. In total, Shiara spent a year completing plasmapheresis treatments.

During her treatments, Shiara’s nurse was Jerry Lewis, an ambassador with LifeQuest Organ Recovery Services. Jerry’s wife was an organ donor when she passed away, and Jerry volunteered with LifeQuest as a guest speaker in high school classrooms, sharing the importance of donation with students. He encouraged Shiara to share her story with her classmates.

Shiara shares her story at Citrus High School.

Since then, Shiara also was trained to be a LifeQuest Ambassador, and she has presented to Citrus High School students in multiple classes.

“I’ve loved volunteering,” Shiara said. “I love sharing my story and encouraging people to be donors. Donation is beautiful.”

Shiara graduated high school on time with A’s and B’s. She hopes to begin classes at Gainesville’s Santa Fe College in the coming year, where she plans to study nursing.

“Register as organ donors so others have a chance at life,” Shiara said. “When people get transplants, they can go on to experience and accomplish amazing things.”

Waiting

July 21, 2020:

“A transplant would mean freedom,” said 17-year-old Max Williams. “I could play sports with my friends and not have to sit out after a few minutes. It would mean I could graduate and become an adult. Getting my heart transplant would give me life.”

Max has been waiting for a heart transplant since January, and the majority of that time he has spent hospitalized at UF Heath Shands Hospital in Gainesville, Florida.

He was born a full-term, 7-pound, 2-ounce baby; however, at 18 weeks gestation, he was diagnosed with hypoplastic left heart syndrome, a congenital heart defect that impacts normal blood flow through the heart.

Max spent his first two months of life in the hospital in Columbus, Ohio, undergoing multiple procedures. At three days old, Max underwent a procedure to reduce excessive blood flow to the lungs. He did not respond well, having to get a feeding tube and growing at a very slow rate. At three months old, Max underwent a more involved open-heart surgery to attempt to improve his heart defect.

Max Williams at UF Health Shands Hospital waiting for his heart transplant.

At three years old, Max had his final surgery to redirect blood flow to his lungs. He recovered quickly and did not spend another night in the hospital for many years, until more recently.

When school began in August at Williston Central Christian Academy, Max felt extremely fatigued. This was abnormal. Max always had energy for school, sports and any other activities. After a visit to his long-time cardiologist at Orlando Health Arnold Palmer Hospital for Children, where he underwent a cardiac MRI and catheterization, it was clear that Max was in heart failure.

Max was placed onto new medications but continued to do poorly. By December, he could not get out of bed. His cardiologist referred him to UF Health Shands Hospital, where he learned that his only option would be a heart transplant.

In mid-January, Max was officially added to the heart transplant waiting list. On February 3, he was admitted to the hospital, and he has not left the hospital since. His status is “1A,” meaning he is in the top tier of potential transplant recipients.

“Initially, we all did really well,” said Erin Williams, Max’s mother. “We had a routine. His friends were able to come visit, and his spirits were high. As two weeks turned into four weeks, the reality set in that this wasn’t going to be quick.”

The coronavirus pandemic has made an already difficult situation nearly unbearable, according to Erin. Max went from being able to have many visitors to just one parent allowed bedside from March 26 until June. He is now permitted one additional visitor, which has helped pass the days.

Max Williams with his parents at UF Health Shands Hospital in Gainesville, Fla.

Throughout his wait, Max’s Williston, Florida, community has supported the Williams family, creating Donate Life T-shirts and wearing them every Wednesday during the school year, sending gifts, calling Max, and doing whatever can be done to lift his spirits.

“From the moment we knew his health was declining, our community has rallied around Max in every way,” Erin said. “A few weeks ago, the grandparent of a former student of mine organized a parade of sorts for him. People drove from Williston with signs and gifts, just to brighten his day. It really helped to rally his mood at a time when he was feeling so down about missing home and his old life.”

Erin also is grateful to the UF Health nurses on Max’s unit who not only play games and share treats with him, but also threw him a “100 Day Party” for his 100th day in the hospital.

“There are a lot of kids and adults waiting,” Max said. “Some of them have been waiting a lot longer than me, and I have been waiting a long time. Some of them are just tiny babies. They haven’t even left the hospital yet. If someone you love dies, you can’t change that, but you can make the best of it by giving their organs to people who could go on to do a lot of really good stuff in the world.”

Nationally, more than 110,000 people are waiting for organ transplants, and 3,500 of them are waiting for hearts. While her son waits, Erin wants to encourage more people to consider the impact donation has.

“With so many waiting, why not be a donor?” Erin said. “What will your loved ones do with your perfectly functioning heart, if you no longer have brain activity? They can donate them and give life to those organs in someone else. Your loved one will live on for generations to come.  Your loved one’s heart will give Max a senior year of high school, a chance to live a full life as a young adult, a chance to become a father himself.”

Second Quarter Feature: LifeQuest Ambassadors of the Month

LifeQuest Organ Recovery Services recognizes ambassadors of the month to bring attention to those who generously give much of their time to organ donation outreach. In this blog, our second quarter nominees answer questions related to their time volunteering.

 

April Ambassador of the Month: Liz Kasey

1) What caused you to become an ambassador?

Diagnosed with diabetes in 2005, I had gone many years not knowing and had done damage to my kidneys. I found out that I would need to go on dialysis and would need to go on the transplant list. I received a kidney through the paired donation program.

2) Why do you find being an ambassador important?

Volunteering with LifeQuest gives me the opportunity to give something back and hopefully to make a difference in the lives of others.

3) What do you enjoy most about volunteering?

My number one goal every day is to be the reason someone smiles. I hope to spread my story to save even more lives.

4) Why would you encourage others to become LifeQuest Ambassadors?

I am not sure if there is anyone else in the world who has as much support as I have standing next to me. I am so fortunate to be surrounded by my amazing family and friends. I have the best medical teams available to help me, and it is a blessing to help support others as they walk through this same journey.

5) Why do you encourage others to register as organ donors?

I am forever grateful to my paired donor, whom I may never know. I am very grateful for my friend, Marci, who donated her kidney to someone else so that I could receive mine.

 

May Ambassador of the Month: Shiara Veltman

1) What caused you to become an ambassador?

I wanted to become an ambassador to share my story, educate others and show other kids who may be going through the same thing that there is hope, and you can get better.

2) Why do you find being an ambassador important?

I get to educate people about the process of an organ transplant and debunk some common myths behind it.

3) What do you enjoy most about volunteering?

I like getting to talk to students about my experiences and see them learn new things they did not know about their organs, and getting to hear others’ experiences.

4) Why would you encourage others to become LifeQuest Ambassadors?

It helps spread awareness for organ transplants and encourages people to become donors.

5) Why do you encourage others to register as organ donors?

Everyone deserves a second chance at life, and you can give that to someone through donation.

 

June Ambassador of the Month: Allie Biess

1) What caused you to become an ambassador?

I was an organ recipient at a young age, 18 months old. It was not until I became a registered nurse, and then later became an ICU nurse, that I knew about LifeQuest. I always wanted to find a way to give back and spread my appreciation and knowledge behind what organ donation is, and what it means to recipients. I attended an educational meeting with other recipients and realized how many community opportunities there are to promote organ donation.

2) Why do you find being an ambassador important?

As a registered nurse and even in daily life conversations, I began to realize how many people do not realize exactly what it means to be an organ donor and how much false information there is about the subject. I think being an ambassador is not just about promoting people to sign up as donors, but it is also about giving proper information so people in the community can make educated decision. It is also about encouraging families to have uncomfortable conversations so, in the event of unexpected deaths or accidents, families can have a little bit of peace and clarity. It may be they do not want their family member to be an organ donor, which is completely acceptable. However, an informed decision is always the best decision.

3) What do you enjoy most about volunteering?

I love being able to educate and represent what organ donation means. It is hard to conceptualize what a difference organ donation makes. However, being able to hear someone say, I would not be here without someone choosing to allow me to receive the gift of life, brings a whole other dimension to the meaning behind organ donation.

4) Why would you encourage others to become LifeQuest Ambassadors?

I encourage anyone and everyone to be an ambassador. Anyone involved in organ donation, donor or recipient, I encourage educating the community. It can indirectly save lives. Properly educating someone on the topic of organ donation may pass down through families and friends and, in turn, may motivate someone to donate and save another person’s life. It really has a ripple effect.

5) Why do you encourage others to register as organ donors?

I have had the privilege, and I feel blessed in life to see all spectrums of organ donation. I had the privilege at 18 months old to receive a transplant from my mother. I had the opportunity to sit with my fiancé’s father as he waited for a donor for a heart transplant and then watch as he recovers from receiving a heart. Shortly, it will be a joy to see him walk down the aisle at our wedding. As an ICU registered nurse, I have had the honor of sitting bedside and having a family member decide to make their child an organ donor as the doctors have deemed the patient medically brain dead. I have also had the privilege of taking care of this patient leading up to this decision. I have stood with coworkers in the hallway as a patient and their family participated in an honor walk, wheeling the patient down the hall as they entered the OR to begin the donation process.

Each experience left me humbled to be alive, humbled to be present, humbled to be a nurse and even more empowered to be an ambassador.

Life is never promised nor always what we expect. These events all have sadness involved, especially when they are unexpected. For donors, many times families are hurting. Medical team members dread having to give bad news to families. Uncomfortable talks take place. However, there is another side of complete and indescribable joy for both the families of the donors and the recipients. Life is continued or maybe even restarted. For my fiancé’s father, it meant being able to stand in life for food without going into cardiac arrest in public. Donation for me meant getting to stand at the bedside in a career, I love, get married and later have children of my own.

Even in dark times life can be valued, continued and a legacy made even more and I would say this is what organ donation can provide.

A Vast Connection to Transplantation

Alexandra (Allie) Biess was born on her due date, September 17, 1993. She was a full-term, 8-pound, 11-ounce baby.

Allie was Maribeth and Larry Biess’ first child. She was a little jaundiced at birth, which is not abnormal for a baby, so her doctor suggested phototherapy to resolve her condition.

After six weeks, Maribeth returned to work and hired an experienced babysitter to help her with Allie.

“She told me, ‘There’s something wrong with your baby. You need to go to the doctor immediately,” Maribeth recalled.

The pediatrician was surprised to see Allie was still jaundiced. He suggested blood work followed by a nuclear medicine test. The test results suggested a problem with liver function.

Pediatric gastroenterologists further reviewed Allie’s results and discussed the possibility of obstructed bile ducts, a rare condition known as biliary atresia. The only way to be certain was to perform exploratory abdominal surgery.

Allie held by her father, Larry, at the University of Chicago’s hospital.

At 10 weeks, Allie underwent surgery. The surgeon confirmed biliary atresia and performed a Kasai procedure in which Allie’s gallbladder and damaged bile ducts were removed and replaced with a section of her intestines. The doctors said they would need to perform another surgery in three months to see if the Kasai was working.

“After that, I was told, ‘It’s the worst case scenario. Your daughter needs a liver transplant, but she’s too small. Keep her alive until she’s big enough for doctors to get their hands in her abdominal cavity,’” Maribeth said. “We never allowed it into our minds that she wouldn’t survive.”

The Biess family began exploring options. Larry visited the local university library and learned about living-related liver transplants. The University of Chicago, at the time, was a leader for living-related liver transplants, and the family traveled to Chicago, where Larry was tested first for compatibility; however, Maribeth was a better match.

On January 2, 1995, Maribeth donated a portion of her liver to her 15-month-old daughter. The surgery lasted eight hours.

Allie returning to Jacksonville with her mother, Maribeth, following Allie’s transplant.

Growing up, Allie was admitted to the hospital often. Anytime she was exposed to childhood sicknesses, such as the chicken pox, she had to be hospitalized.

“We tried to treat her like a normal kid and not protect her from normal kid things,” Maribeth said. “For the most part, she didn’t know anything was wrong with her.”

Allie had blood drawn weekly for the first two years of her life, and then every two to four weeks after that. She became so familiar with the routine that when she was about four years old, she asked her phlebotomist, “Are you sure you shouldn’t be using a butterfly needle?” The nurse told the phlebotomist Allie was right, that a butterfly needle worked best on someone her age.

That inquisitive nature kept Allie persevering forward, without major setbacks and in relatively good health.

In fourth grade, one of her doctors at Wolfson Children’s Hospital in Jacksonville recommended Camp Boggy Creek to her. The Eustis, Florida camp is for children with serious illnesses. While Allie would not be as sick as some of the others in attendance, the doctor insisted the campers would be given hope by being around a peer who was doing well.

Allie as a counselor at Camp Boggy Creek.

Allie loved Camp Boggy Creek. Each week was comprised of children with different groups of conditions. Because there were not many other kids with transplants, Allie went to the “blended” week. She remained a camper for six years, then became a “leader-in-training,” and eventually a counselor.

“The goal was to find fulfillment and joy in helping kids in need, and I think that inspired me to pursue nursing,” Allie said. “There’s fulfillment in gearing life toward helping others achieve what they want to do.”

Allie attended nursing school at Florida State College at Jacksonville and the University of North Florida. She works as a registered nurse at Baptist Medical Center Jacksonville in the medical intensive care unit (MICU). She also works part-time in Memorial Hospital’s ICU. She wants to go back to school to become a nurse anesthetist.

“I’m grateful and lucky to have a donor,” Allie said. “If you’re going to get a second chance at life, make it count.”

Allie’s connection to transplantation does not stop with her, though.

In February 2020, Allie got engaged to Tony Benso, firefighter and paramedic with the Jacksonville Fire and Rescue Department. Tony’s father, John, received a heart transplant on August 24, 2019, at 63 years old.

Allie and Tony at his fire station with their dog, Raleigh.

“I’m thankful my dad’s still here,” Tony said. “It’s an important time in my life. If my dad wasn’t around for it, it’d be upsetting. For him to be saved by someone’s heart, it’s an amazing gift.”

The Benso family has a history of heart disease. Both John and Tony were nearly 300 pounds at their heaviest. Tony lost 100 pounds in a couple months during high school. John had elastic lap band and gastric bypass surgery, but those had complications, resulting in more heart damage. John was diagnosed with ventricular arrhythmia, which caused his heart to have abnormal heartbeats and sometimes stop.

Tony with his father, John, a heart recipient.

In mid-August 2019, John stopped at Krispy Kreme to buy donuts for his son’s fire station, when he passed out. He was transported to Mayo Clinic Hospital in Jacksonville, where he was immediately listed for a heart transplant. He remained hospitalized until his transplant, which miraculously came just two weeks later.

“I’ve always been an organ donor, but I’m quite appreciative of someone’s sacrifice for me,” John said. “I’ll donate anything I can, and I encourage others to register as donors. It may not be for them. It may be a family member or close friend in need. What good will the organs do for you? They will just go to waste.”

Allie and Tony plan to marry in October 2021, and their family will be profoundly connected through the Gift of Life.

“I love the concept that just because your life is over, life isn’t actually over,” Allie said. “Your life can continue through donation. It continues on at multiple levels, both in who you’re donating to, but it also continues in the life of the recipient’s family. Donation continues life for everyone involved.”

The Wait

Some people feel a sense of dread when they get a phone call from an unknown number. That was not the case with Paul Croft, who felt a surge of adrenaline when his phone rang at 4 p.m. on a Tuesday afternoon. He knew the drill. Answer your phone at all times of the day or night, especially if it is from the hospital.

Croft is going to great lengths to find a kidney donor.

“They notified me I was on standby,” Croft said. The Tallahassee resident has been on the waiting list for an organ transplant for a year.

It is common for patients like Croft to be called about an organ offer. One patient will be the primary candidate and the others will be backups in case the primary is not available or eligible.

“Two hours later I got the call that I was the primary recipient,” he said.

It was go time. Croft, who lives with end-stage renal disease, was next in line for a life-saving kidney transplant. Finally, he would get a second lease on life.

Like many patients waiting for the call, Croft planned for this moment. His suitcase was packed. He leapt into action and telephoned family and friends who had agreed to care for his special needs son on a moment’s notice.

Then he and his wife, Debra, waited.

“It’s tough to wait,” Croft said. “You can’t let it consume you. If you do, it’ll just tear down your physical and mental health.”

Croft was not prepared for the heartbreak that lay ahead. The transplant team determined the donor organ was not suitable for him. He would not get the kidney transplant he desperately needed after all.  At least not this time.

Sometimes a patient is placed on standby or reports to a transplant center for a potential offer, but then does not receive the transplant. Dry runs can be emotionally draining but are a normal part of the donation process.

“I went from low to craziness to very high and back again,” Croft said. “It’s like the drop on a roller coaster. I was a little ‘blahed’ out and exhausted from it all.”

Croft began to research organ donation, how it works and why it takes so long for patients like him to find a suitable match for a transplant. The facts were a sobering reminder the odds are not in his favor. More than 112,000 patients in the United States are waiting for organ transplants. Each day, 10 people are added to the list. About 20 people die every day while waiting for an organ transplant.

Croft pleads for a donor on the back window of his red Ford Edge.

Because Croft needs a kidney, the mission to find a donor match is even more daunting. Nearly 85 percent of patients on the transplant list are waiting for kidneys. The average wait time for a kidney is three to five years. Nearly 5,000 people die every year waiting for a kidney transplant and another 5,000 are taken off the list because they are no longer healthy enough to receive a transplant.

“Some days are very agonizing because with social media you read how the list is growing, along with the need for kidney transplants nationwide,” Croft said. “It makes you wonder, when will it be your turn?”

The emotional letdown was a turning point for the 66-year-old grandfather of four who is beating the odds – barely.  Like many patients who are waiting for organ transplants, Croft has learned to live with a real risk of death.  Even so, it has not weakened his instinct to survive.

“I’m hoping for a living donor,” he said, optimistically.

A kidney transplant could happen sooner if a patient has a family or friend who is willing to be a living donor. A living donor must be tested to see if he or she is a match for the patient. If a person has no willing, matching, living person to donate to him or her, then they are placed on a list and must wait for a kidney from a deceased donor.

Because there are no guarantees, Croft joined a growing number of patients who have launched their own search for an organ donor while remaining on the wait list. His public pleas, visible on cars, clothes, and social media in the Tallahassee area, grow bolder with each passing day.

So far, he has put the word out to family and friends, shared his plight with members at the church where he attends, and posted appeals on Facebook. He made t-shirts with the tag line, “In need of kidney,” and displayed a sign proclaiming his need for a type-O kidney donor on the back window of his red Ford Edge.

Croft made t-shirts asking for a kidney.

If all of this is not enough – and so far it is not – Croft asked Lamar Advertising in Tallahassee to help promote his search for a kidney donor. They happily obliged.

“I told him, we’ll help you out where we can,” said Chad Oaks, Lamar Advertising real estate manager. “Then COVID-19 hit.”

Croft’s “SHARE YOUR SPARE” trailer appeared on donated billboards in and around Tallahassee for months leading up to the pandemic, when the ads were abruptly supplanted by public service announcements from the Florida Department of Health.

Croft did not find a donor, but his outdoor media messages gave another man the courage to run his own billboard campaign with Lamar Advertising, also pleading for a kidney donor.

“This is what’s it’s come to,” Croft said. “As the years progressed my kidney disease progressed, and that’s how I got to the point where I am today. I just want to be healthy for my son. He still needs me.”

To look at him, you would not know Croft is battling stage 5 chronic kidney disease. He has diabetes, but has managed to stay off dialysis. He works in his yard every day and, except for failing kidneys, his overall health is good.  A paradox faced by many patients waiting for an organ transplant.

“To look at me you wouldn’t think, I need to donate a kidney to that guy,” Croft said. “I may look good, but my kidneys are declining.”

Time on the wait list can vary, leaving many patients and caregivers feeling powerless. Keeping appointments and staying in contact with the transplant team are ways to feel more in control during the waiting process.

Robert and Betty Morales know how it feels to wait.

Betty Morales’ husband, Robert, has been waiting for a kidney for more than year since being diagnosed with Wegener’s disease. Unable to manage his illness and unwilling to stand by and do nothing, she trained as a LifeQuest ambassador to become an advocate for organ donation in the Tallahassee community.

Morales shares candid posts about the couple’s transplant journey on her Facebook page, and she speaks in high schools and at public events. Robert, who volunteers as a coach at Leon High School, was recently featured in a story on WTXL-TV, in part because of his wife’s community involvement.

“This is a terrifying time for us,” Morales said.

Emotional ups and downs while waiting for a transplant come with the territory.  The upside is that in 2019 more than 40,000 organ transplants were performed in United States, and 7,300 of them were made possible by living donors. Donors give others a second chance at life, and many donor families are comforted in knowing their loved one helped save others.

“I believe in God and God has a hand in this,” Croft said. “I just have to be patient, even if some days are better than others.”

 

To view the WTXL-TV story mentioned above, please visit: https://www.wtxl.com/sports/high-school-sports/leon-high-football-coaches-family-bond-goes-beyond-the-game

On a Mission to Inspire

A couple months after she was born, Shechinah Butler was diagnosed with biliary atresia, a liver disease that affects the bile ducts and typically occurs in infants.

Although from Jacksonville, Shechinah was listed to wait for a liver transplant through Miami’s Jackson Memorial Hospital, one of the nearest hospitals for the procedure at the time. Shechinah received her transplant when she was one-year-old, and she’s more than 23 years post-transplant.

“Life after my transplant was and has been very good,” Shechinah said. “I’ve had little to no complications. I haven’t had any major hospitalizations, and I only take one anti-rejection medication.”

Shechinah graduated from Robert E. Lee High School and attended Bethune-Cookman University, a historically black college and university (HBCU) in Daytona Beach, Florida, where she graduated with her bachelor’s degree in gerontology, the study of aging. She currently works in the activities department of an assisted living facility near Jacksonville Beach.

“My grandma inspired me to work with the elderly,” Shechinah said. “I enjoy my job. I love the interactions I have with the elderly, and it’s interesting being able to hear their stories. I have what some consider to be an ‘old soul.’”

Following college, Shechinah decided she wanted to get more involved in educating the community about the life-saving effects of organ donation, so she reached out to LifeQuest Organ Recovery Services to be trained as an ambassador.

“My goal is for people to become more informed about how important organ donation is,” Shechinah said. “I want them to do their research on the subject and fully understand how impactful it is. I mainly want to bring more education to the African American community, and I want to inspire others to see organ donation as a second chance at life. It’s been a second chance at life for me.”

First Quarter Feature: LifeQuest Ambassadors of the Month

Beginning in 2020, LifeQuest Organ Recovery Services began to recognize Ambassadors of the Month to bring more attention to those who generously volunteer much of their time to organ donation outreach. In this blog, we showcase our three ambassadors for the first quarter of the year and ask each of them questions related to their time volunteering.

 

January Ambassador of the Month: Jaye Hamblet

1) What caused you to become an ambassador?

Realizing the life-changing gift of organ donation after watching a friend’s transformation from debilitating grief following the death of a grandchild to life again upon learning that her granddaughter’s organs had saved four people – two of them children themselves.

2) Why do you find being an ambassador important?

Organ donation is not something easily discussed, and there is a lot of misinformation out there. Educating others, especially teenagers, about organ donation and providing the facts results in more lives saved. 

3) What do you enjoy about volunteering?

Giving back to the community is important to me, and this is one way I can do that. Being retired allows me more time for volunteer work. 

4) Why would you encourage others to become LifeQuest Ambassadors?

You can volunteer as much or as little as you want and choose how you want to volunteer, whether it’s public speaking, office assistance or working a table. It’s easy and rewarding. It saves lives.  

5) Why do you encourage others to register as organ donors?

In my extended family, there are three organ donors, one living donor and one recipient. I’ve seen first-hand that organ donation saves lives.

 

February Ambassador of the Month: Kevin Jacques 

1) What caused you to become an ambassador?

Learning I would need a life-saving liver transplant is what made me start volunteering with LifeQuest.

2) What do you enjoy about volunteering?

I love being able to share my story with everyone. It is my way of putting a “face” on organ donation. Many people don’t know think they anyone who has received a transplant, so by telling my story I am able to make a connection with them. Then, organ donation becomes more real.  

Also, my story is pretty interesting. Up until I was 21 years old, I assumed I was healthy. It was not until I had blood work done that I found out that I had a problem with my liver. After years of tests, I learned the reality that I would eventually need a liver transplant. A lot of people find it interesting that I was on the transplant list for five years before getting my transplant. 

3) What has surprised you about volunteering?

A lot of people believe the myths that they hear about becoming an organ donor. Several people have mentioned that they feel that if they are an organ donor, doctors will not try hard to save their life. However, a first responder or medical professional’s main priority is making sure that they do everything possible to make sure that people survive. 

4) Have you developed new friendships through our Donate Life community?

Yes, I have made quite a few new friends from all across Florida’s Panhandle. I have made friends with several liver transplant recipients. It has been great to connect with them and share stories. I find it interesting that everyone’s story is so different, but we are connected by the fact that we are recipients of the amazing Gift of Life. 

5) Why do you encourage people to register as organ donors?

Everyone is important to someone, and I know without my transplant my daughter, who is now nine, would have had to grow up without a father. It is a difficult thing to think about, but the reality is that you could make a decision that could greatly affect someone’s life in the greatest way possible. 

 

March Ambassador of the Month: Terry Rooks

1) What caused you to become an ambassador?

My brother, Timothy Gregg Rooks, was an organ donor in April of 2014. I became an ambassador to honor Tim and tell others his story.

2) Why do you find being an ambassador important?

Being a LifeQuest Ambassador has brought me healing, peace and joy as I process Tim’s death.  It has also brought me the opportunity to meet other donor families and transplant recipients. I listen to their stories and realize the impact organ donation has on others.

3) Why would you encourage others to become ambassadors?

I encourage donor families and recipients to become ambassadors because of the healing it brings to you. It honors the loved one that gave the Gift of Life.

4) Have you developed any new friendships through our Donate Life community?

I have acquired many friendships with LifeQuest members. As a member of LifeQuest’s Advisory Board, I have met the directors and some transplant doctors. Their passion for their work fills my heart with joy. I have a new “chosen” daughter in Coral Denton, the LifeQuest Senior Public Education Coordinator. Coral and Tim have the kindred spirit for the love of travel and adventure. She has honored him by writing his initials in places she has visited.  Coral has brought healing into my life. We have developed a friendship and passion for donation as we spread the word to register to become an organ donor.

5) Why do you encourage people to register as organ donors?

The Gift of Life is so important! Organ, tissue and eye donation impacts many people. You never know what life has in store for you and your loved ones. Perhaps they might need an organ for a second chance on life. It could be you! It takes more people registering to make a life-saving difference.

Two Peas in a Pod

As alike as two peas in a pod.

That is how Danny Martin described his friendship with Katie Walton. They trained together and began serving as LifeQuest Ambassadors two years ago. They immediately hit it off and have volunteered together ever since.

“We are very close, and it’s very sweet,” Martin said. “Katie’s a special person in my life. We work well together. It’s a special kind of chemistry.”

By all accounts, Martin and Walton are a powerful pairing and a perfect fit. Two friends on a joyful mission. Neither craves the limelight. She is easygoing. He is a prankster. Together, their unique traits lead to unimaginable success and positive results.

Simply put, some people just work better in pairs.

“Danny is just the best,” Walton said. “He’s my friend and my transplant buddy. We think the same way. We practically finish each other’s sentences.”

Katie and Danny at Ascension Sacred Heart Hospital, Pensacola, Fla.

The dynamic duo are passionate regulars at countless events in the Gulf Coast region, where they host information tables, distribute brochures, and speak at schools, hospitals, and community events to help raise awareness about organ donation. They rarely work alone.

Day or night. Near or far. It does not matter. The Pensacola residents are willing to go just about anywhere to share their stories.

“I have the time and want to do it,” Walton said. “I don’t care if I have to go to Timbuktu. If I can put a spark in one person’s mind, it’s worth it.”

More than 112,000 people currently are awaiting  life-saving transplants. Martin and Walton were two of those people. Strangers before transplant, they are now best friends who serve their communities together. They work to support organ donation and honor the donors who saved their lives.

Martin received the gifts of a heart and a kidney at Mayo Clinic Hospital in Jacksonville. Walton received a kidney and a liver transplant at UF Health Shands Hospital in Gainesville, thanks to a selfless 19-year-old donor.

“Somebody died so that I could live, and that means a lot to me,” said Walton, who knows what it means to lose a loved one. Her brother was killed in a bicycling accident at a young age.

Donate Life Month celebration at Sky’s Pizza.

The experience upended Walton’s everyday life and forced her to appreciate the little things.

“I rejoice in my life,” she said.

It is worthwhile to celebrate everyday heroes who offer their time and talent to their community. Without generous volunteers, LifeQuest would be unable to fulfill the life-saving mission of helping to save patients in need.

Jane Wilhoit, LifeQuest Senior Hospital Services Coordinator in Pensacola, works with both volunteers on a regular basis. She said their unbreakable bond and harmonious spirits are a delight to everyone around them.

“Danny and Katie are truly special,” Wilhoit said. “They’ve become the best of friends and are dedicated volunteers who participate in many different venues to promote organ donation.”

While circumstances may have brought Martin and Walton together, their camaraderie is real. They genuinely like each other. They meet for coffee and bagels about once a month and have come to rely on each other in times of need.

What’s more, they communicate easily, trust one another and feel understood.

“We can talk to each other,” Martin said. “She’s an awesome person. She understands my situation. I understand her situation. We just click.”

“We sure do enjoy being together,” Walton said. “He’s got so much to offer.”

Mutual respect is also key. Walton said she admires how Martin handles adversity. His wife passed away shortly after his transplant surgery.

“He was, is, still so upbeat, kind, and passionate, as am I, about honoring our donors,” Walton said.

Danny and Katie at a health fair in Milton, Fla.

The fear Martin and Walton experienced while waiting for an organ transplant played a transformative role in both of their lives. They fully understand the brevity of life and the sheer joy of living it.

“It’s just fun to get involved with somebody who feels the way I do,” Walton said. “Danny’s funny, too. Oh gosh.”

At one community event, Martin reached out his hand to retrieve a signed organ donor registration card from a close friend at an information table. The woman hesitated.

“She said, I’ll think about it,” Walton said, laughing. “Danny said, ok, I’ll be by later tonight to pick it up.”

Martin and Walton recognize shared experiences like these strengthen the foundation of their friendship, much like their passion for motivating others to register as organ donors.

“I’m the follower. She’s the leader,” Martin said. “She keeps me straight on everything. I’m always available. Just check with my boss, she’ll let you know when and where we go.”

Using the links below, watch Danny and Katie’s video on our YouTube Channel.

https://www.youtube.com/watch?v=np9HlOoTzHA

 

A Change of Heart

March 2, 2020: Whenever the examiner at the driver license office asked Erica Shields if she wanted to register to be an organ donor, she was quick to answer.

“I would always say no,” Shields said. “No, no, no, no, no.”

Then something happened that caused Shields to have a change of heart. Her son, Kaden, then 3 years old, was diagnosed with dilated cardiomyopathy, a critical condition in which blood flow is decreased, causing the heart to enlarge and weaken.

Little Kaden would need a heart transplant if he were going to survive.

“You don’t know how close something like this is until it hits home,” Shields said.

She spent eight months at UF Health Shands Hospital in Gainesville where her son was hooked to a Berlin Heart machine, a heart pump that maintains the blood flow in small children with serious heart failure.

As Kaden clung to life, Shields could not help but wonder why she had declined to register as an organ donor all those times before.

“Prior to everything happening, being a donor just didn’t seem that important,” she said.

Kaden waited six months for a heart transplant that came on April 6, 2019.

Shields has since placed her name on the organ donor registry in the hope that she can one day save a life. She is leading by example and wants Kaden to follow in her footsteps.

It took a near-tragedy to emphasize the importance of registering as an organ donor to Shields. She is hoping it will take far less to convince others who are reluctant to share the Gift of Life.

“When the question is asked, try and think about someone else’s life,” she said.

Fear and distrust are at the root of the problem. One reason is that common myths are prevalent in some minority communities.

“There are many who subscribe to the belief that if a doctor knows you’re a registered donor, they won’t do everything they can to save your life,” Shields said.

Shields admits there was a time when she may have believed the familiar tales. For a variety of reasons, misconceptions about organ donation continue to persist, particularly among African-American and ethnic communities. The end result is a tragic reduction in the number of minority lives saved.

Still, there are glimmers of hope.

While there has been a slight increase in African-American organ donor registrations over the past two decades, it has not been enough to offset the growing number of minority patients in need of organ transplants.

In 2016, African-Americans accounted for 30 percent of the overall organ donation waiting list, and 33 percent of the kidney waiting list, despite representing only 13 percent of the U.S. population. Recent improvements in national kidney transplant policy have evened the rates at which African-American, Hispanic and Caucasian transplant candidates receive kidneys from deceased donors, according to data from United Network for Organ Sharing (UNOS).

Today Kaden is an active, 4-year-old who looks forward to starting kindergarten.

An African-American organ recipient does not have to have an African-American donor. But they would be more likely to have a successful match – based on certain genetic markers and antibodies – if more African-American donors were available.

Kaden, now 4 years old, is one of the lucky ones. He received his new heart on April 6, 2019.

“From transplant up until now, everything has been good,” Shields said. “Kaden has a lot more energy, of course. He’s just making up for lost time.”

While Kaden is back to being an active little boy who enjoys playing with big brother, Dylan, moving on with their lives is still a challenge for the family.

On a recent visit to the driver license office, the clerk once again asked Shields if she wanted to register to be an organ donor. As always, she was quick to answer.

“Yes, of course!” she said emphatically. “The guy looked at me like why are you saying it like that?”

She proudly told him that her son had received a heart transplant.

Heard that Myth about Organ Donors?

January 22, 2019: Nearly 113,000 people in America are waiting for life-saving transplant surgeries. The sad truth is that many of them will die waiting. There are not enough registered organ donors to meet the need. Why? Myths about organ donation are a large part of the problem. There are myths about everything from the cost of being an organ donor (cost is actually zero) to religions opposing donation (most faiths support). Perhaps THE most challenging myth is the one that doctors and nurses will not try to save your life if you are a registered organ donor. What to do? Providers at UF Health Jacksonville have decided it is time to step up and speak up. One of the first to do so is Dr. Lisa Jones

Dr. Lisa Jones
UF Health Jacksonville

Dr. Lisa Jones is a Critical Care pulmonologist and intensivist at UF Health Jacksonville. She is part of the hospital’s Trauma One team and cares for critically injured and critically ill patients. Aware of this myth and its impact on support for organ donation, Dr. Jones is joining with three other providers at the hospital to lead the MythBuster awareness campaign. She hopes people will watch the videos that are part of the effort and begin to understand that this myth just makes no sense.

Dr. Jones is honored to announce the launch of MythBuster during an interview on The Morning Show on WJXT-TV in Jacksonville on Monday, January 27, 2020. She plans to share a number of facts about organ donation that bust this myth, including these:

  • Hospital and emergency providers do not know whether or not patients are registered organ donors. They are not allowed access to the national donor registry.
  • Patients can donate organs only if they experience a condition impossible to survive – brain death or circulatory death while on a ventilator, a machine which helps them breathe.
  • Hospital and emergency providers are not allowed to approach families about possible organ donation. If medical tests confirm brain death, or if circulatory death has occurred, they contact the area’s organ procurement organization to speak with families and help them understand what has happened.

Joining Dr. Jones in the MythBuster campaign are critical care nurse Trina Adams, trauma surgeon Dr. Brian Yorkgitis and senior chaplain Saundra Gadsden. All of them looked into the video camera straight on to make some pretty basic points. Number One: They chose their careers and trained for years because they want to save lives, not to take lives. Number Two: They are all registered organ donors. If this myth were true, why would they register?

The MythBusters are just getting started, and there is much more to come. Please share this and help spread the word. We welcome your comments, questions and ideas!  Check back here and on all our MythBuster sites for new videos, new stories, new answers and what we hope will be a new day…a day where this myth does not stop anyone from registering to give the gift of life.

YouTube.com/LifeQuest

Facebook.com/LifeQuestFla

LifeQuestFla.org

Perseverance

January 2, 2020:
When the inner core of Hurricane Michael slammed into Panama City Beach, Fla., last October, Dr. Marlene East, a licensed mental health counselor, was at her house a stone’s throw from the Gulf of Mexico. Construction inside her new home was not yet complete, but she was confident its infrastructure would withstand the deadly Category 5 storm moving ashore.

“It was traumatic for everyone here,” said East, who offered shelter to her friends and neighbors.

After the storm passed, she and her guests were dumfounded by the extent of devastation surrounding them. East lost several trees, and some rental properties she owned were damaged by the storm; however, her home was spared. Many residents in her neighborhood were not so lucky.

Thankful for her good fortune, East wanted give back by helping others. She counseled many who were affected by the hurricane and looked for opportunities to turn helplessness into hopefulness.

Across town, a similar scenario played out in the aftermath of the hurricane. Teresa Jones, manager of patient experience at Ascension Sacred Heart Bay, worried about the future of the medical facility. The hospital sustained major damage. Patients had to be evacuated. Jobs were lost. Livelihoods gone.

Heartbroken, she watched as workers from Servepro of Bay County, a fire and water restoration company, collected five-gallon buckets of debris and shattered glass from the hospital’s iconic gray tower windows, which once stood as a beacon of hope. We should do something meaningful with this, a worker suggested to Jones.

“Right away, Marleen (East) popped into my head,” Jones said. “I’ve known her forever. I said let me see what she thinks.”

A glass interpretation of Hurricane Michael

East, an accomplished artist, jumped at the chance to turn piles of rubble and glass into a meaningful display of art. The result is a stunning glass painting meant to inspire progress and optimism in the community. The piece, titled “Perseverance,” is on display in the main lobby at Bay.

“I was excited about the opportunity to take that glass and make it something symbolic,” East said. The doctor said she uses art therapy when counseling patients.

“I see it as a way for people to express themselves, especially children,” she said.

The simple art project quickly swelled into a community effort involving employees at Bay, Servepro and local organizations. Together, they brainstormed with East and settled on the idea of fusing thousands of tiny fragments of glass into one large piece that would illustrate the power and destruction of Hurricane Michael.

When that didn’t work, a brighter idea emerged using butterflies as a symbol of recovery and resurrection. It was meant to be.

“The hurricane was going to dominate the piece,” East said. “We don’t want to be reminding patients about the worst time in our community’s history. We want renewal to be dominant.”

Bay gave the go-ahead, and Servepro provided funding needed to cover expenses. East threw herself into the project while simultaneously rebuilding her own life.

Makeshift sifter made from a window screen and fire pit.

She began by washing the tiny slivers of glass on a makeshift sifter by placing a window screen over a fire pit in her back yard. She painstakingly sifted through the debris separating tiny pebbles and pine straw from glass. Anything considered salvageable was placed on a sheet and left to dry in the sun.

“It was all in my head as to where it would go,” East said. She built a four-foot by six-foot backdrop to display her inspirational mosaic.

“I started dreaming about the painting,” she said. “With art pieces, I’ll see it in my head.”

It took a week to paint the background, or underpainting, using a heavy body acrylic similar to a modeling compound applied with palette knives. In a few areas, it was squirted on like cake icing.

Next she glued down the glass. The final step was applying the resin, a two-part epoxy, which was torched to remove air bubbles. The finished piece was set aside and allowed to cure for three weeks.

The result is more recovery and happiness than darkness of hurricane. A very different outcome than where the piece began.

“I added a lot more color with flowers,” East said.

A butterfly takes flight.

Little by little, darkness gave way to light, hope and healing. Pine straw became butterfly antennae, pebbles morphed into a garden pathway, and the largest pieces of glass turned into shimmering butterfly wings. Soft blue and gray tones were added to reflect the colors of the hospital. In the top right corner, a lone butterfly appears to be on the verge of taking flight.

“It’s very powerful,” Jones said. “It’s a very tactile piece.”

Perseverance will eventually be front and center on the wall overlooking the receptionist area in the main lobby at Bay. For now, it’s prominently displayed on a table near the front door for visitors to enjoy.

The glass painting recently served as a backdrop at a Tree of Life celebration held in honor of donor families and organ recipients and co-hosted by LifeQuest.

“Perseverance” is on display at Ascension Sacred Heart Bay.

“The process of losing a loved one and dealing with trauma can be similar,” East said.

Typically a person goes through seven stages of grief after an ordeal: shock, denial, anger, bargaining, depression, testing and acceptance. While every stage is difficult to navigate, at least one study revealed people get really upset when they are told to work toward the final stage of acceptance.

“We focus on reintegration as opposed to acceptance,” East said. “You’re always going to feel a sadness about the loss of a loved one. You have their memories in you. You move forward. Life will never be the same. That just seems to really help people, rather than acceptance.”

Verse James 1:12 touts perseverance

The holidays can be especially trying for those who go through tough times or lose a loved one. For one thing, grief is like a window that opens and closes of its own accord, East said.

“You don’t know when it’s going to open or close,” she said. “You can be totally fine one day, then the window opens, and you break down and cry.
Just know that’s going to happen.”

Perseverance was created to offer solace to anyone who is suffering, not just victims of Hurricane Michael. Its imagery can just as easily be applied to the grief donor families experience during the holidays. Glass fragments parallel the shattered lives of those left behind after a loved one dies. Butterflies symbolize families who are picking up the pieces of their lives after doing something meaningful — sharing the Gift of Life.

Every patient and visitor to Bay Medical may get the chance to experience the infectious sanguinity of East’s artwork. Hospital administrators are considering whether to carry the butterfly theme throughout the compound. They’re also batting about the idea of selling limited edition greeting cards or other items in the gift shop featuring glass and debris blown in by Hurricane Michael.

“It’s just a beautiful painting,” Jones said.

To view a video of the Tree of Life event at Ascension Sacred Heart Bay, please click on this link: https://www.youtube.com/watch?v=qZhiZa1NV48.

LifeQuest Recovers Florida’s First DCD Heart

December 20, 2019:

LifeQuest Organ Recovery Services was the first organ procurement organization (OPO) in Florida to recover a heart for transplant from a donor after circulatory death. Until recently, hearts were only recovered for life-saving transplantation from organ donors who had been declared brain dead.

Several U.S. organ transplant centers have been approved to perform heart transplants from DCD donors under a new clinical trial in which a mechanical device is used to perfuse the organ with oxygenated blood after recovery and prior to transplant. The first DCD heart transplant in the nation was performed successfully earlier this month.

“We are so grateful to this donor who made the decision to help others by enrolling on Florida’s organ and tissue donor registry,” said Danielle Balbis, executive director of LifeQuest. “That decision contributed to the successful recovery of multiple organs for life-saving transplantation.”

There currently are 113,000 patients who are on the national waiting list for life-saving transplants. Of those, almost 3,800 are waiting for hearts. In Florida, there are 5,500 patients on the waiting list, nearly 200 of whom are listed for hearts.

The vast majority of organ donors are patients who have been declared brain dead, which is defined as the complete cessation of all brain activity, including the brain stem. Organ donation after cardiac death is an option for patients who have not been declared brain dead but have suffered irreversible devastating neurologic injuries and whose families have made the decision to discontinue ventilator support. Donation after circulatory death occurs only after the patient’s heart has stopped beating, and death has been declared.

“This is ground-breaking territory for those patients in need of heart transplants,” Balbis said. “So many more lives will be saved due to advancements in medical technology and innovative research like this. It also will allow us to honor the wishes of many more donors by maximizing their gifts.”

A Culture of Giving

November 1, 2019:

Every life has equal value. Every creature deserves the chance to live a healthy and productive life. These principles have guided Sarah Podobinski for as long as she can remember.

“I don’t see anybody’s life being of lesser value than anyone else,” Podobinski said, the casualness in her voice a sharp contrast to her deliberate good deeds. “If you can help someone, I feel like you should.”

And so she does. Podobinski’s generosity knows no boundaries. Family. Friends. Strangers. Even animals. It’s all the same to her. Every life is precious.

So when she came across Demarcus Graham’s online Facebook post pleading for a kidney, Podobinski jumped at the chance to donate one of her own to the Columbia County deputy sheriff. She was screened in August 2018, and four months later she underwent surgery at Mayo Clinic in Jacksonville to save a man she never met.

“She’s truly an angel,” said Graham. A man of strong faith, he is keenly aware of the sacrifice made on his behalf.

Podobinski and Graham share their story with a local TV station.

“It’s like it never happened,” Podobinski said.

She was released from the hospital the next day.

Prior to the transplant surgery, she had never been hospitalized or even suffered a broken a bone. All of which begs the question, why in the world did she do it?

“I get asked “why” constantly,” she said pensively. “My response is, why not?”

Podobinski is not being flippant. Having worked as a surgical coordinator, she witnessed first-hand the fear and misery of patients who were waiting for kidney transplants while on dialysis. She wanted to help. It’s that simple.

In doing so, she joined a select group of loved ones, friends and even individuals who donated their organs to spare a patient an uncertain future. In 2018, nearly 7,000 transplants were made possible by living donors.

Podobinski, however, is an outspoken advocate for the less fortunate. She participates in an informal online group that connects living donors with patients who need organ transplants. Group discussions are candid, and members are encouraged to publicly ask for the organs they need as Graham did.

“You’d be surprised how many random people want to do this sort of thing and donate,” she said, pointing out there is a large community of altruistic people out there just waiting to do good deeds.

All you have to do is ask.

“The altruistic brain works a little different,” said Podobinski, an avid blood donor and registered bone marrow donor. “I know it’s not normal for someone to up and give away their organ, not even to a family member.

“I’ve always been kind of a giving person.”

Her big-heartedness extends beyond the human race. She also runs a dog rescue, Rapscallion to the Rescue, that provides free spay and neutering for pets of families who are struggling financially. The shelter is home to 10 dogs who are paralyzed, amputees, or terminally ill.

Manny takes it easy after donating blood at the UF Small Animal Hospital.

“We try to help the paycheck-to-paycheck people,” she said.

Her own five-year-old pit bulls also donate blood regularly at the University of Florida Small Animal Hospital. Victor and Manny are enrolled in the canine donor program. Just like people, dogs have diseases or injuries that require blood transfusions. Pit bulls have the necessary antigens in their blood to be canine donors.

Podobinski learned of the program from a friend who worked at the hospital.

Victor is enrolled in the canine donor program that provides blood transfusions for sick or injured dogs.

“It made total sense to me,” she said.

The way Graham sees it, Podobinski’s unbridled culture of giving is more than common sense. It was divine intervention. Without a kidney donation, he was destined to end up like his sister. She died while waiting for a heart transplant.

Today Graham is happy, healthy and shares the story of his miracle donor through testimony every chance he gets.

“I was meant to cross her path,” he said. “She may seem like a normal person to you, but in my eyes she wears a cape. She’s my hero.”

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Share this story by visiting LifeQuest’s Facebook page: www.Facebook.com/LifeQuestFla.

 

 

In Celebration and Remembrance

October 13, 2019:

Immense sadness and tears.

That is what I had expected to find at a recent gathering of donor and recipient families held at Pensacola Yacht Club. It was my first time attending the annual event, In Celebration and Remembrance, hosted in part by LifeQuest.

“Bring lots of Kleenex,” a friend advised. So I did.

It turns out I didn’t need them. From the first guest speaker to the last, I was filled with hope and humanity. More than anything, I was awestruck by families eager to share intimate details of their loved ones with strangers for the sake of honoring their gifts and saving a life. It was stirring to say the least. Their sense of connection was palpable and complex. The stories they told vividly illustrated lives intertwined through transformation and a meaningful sense of obligation to their organ, eye, and tissue donors.

The memory table.

Pastor Mike Mashburn, director of chaplain services at Select Specialty Hospital in Pensacola, set a bright tone by opening the event with a prayer of promise and a dose of spiritual insight.

“You’re no more like God than when giving,” said Mashburn, who has counseled many donor and recipient families. “More than that, you’re most like God when giving life.”

Guest speaker Katie Walton echoed the sentiment.

Walton described in detail how fate, faith, and a selfless 19-year-old organ door saved her life. Too sick to receive a much-needed liver transplant, her prognosis would get worse before it got better. Jaundiced and weak, she relied on feeding tubes for nourishment and a tracheotomy to breathe. Her kidneys began to fail, and she was eventually placed on life support.

“It became apparent I was going to be there (in the hospital) a long time,” said Walton, who was nearing the end of her fight when a remarkable coincidence occurred. Her health improved at the same time a donor became available.

Recipient Katie Walton shares her story.

“I knew instantly I was going to live,” Walton said.

She received the gift of a kidney and a liver.

“I’m the lucky one. I’m a normal human being now. I can do anything I want.”

The same could be said of Nic McIver, who nearly had to have his arm amputated after doctors discovered a golf ball-sized cyst on his wrist at age nine. He was diagnosed with Ewing Sarcoma, a rare form of cancer. McIver underwent a bone transplant at UF Health Shands Hospital and quickly moved on with his life. He even medaled in the 2010 Transplant Games of America, a multi-sport athletic competition for people who have undergone transplantation.

Fast forward 12 years. McIver is a busy man. So much so, he was unable to make it to this year’s celebration event. His mother, Candi Owen-Heaton, came in his place. Under different circumstances, McIver’s absence may have felt like a snub. On this night, it was a victory.

“If it wasn’t for a donor, he would have a prosthetic limb,” Heaton told the audience.

Then she read aloud a personal message from Nic, who was away studying medicine at Florida State University. After graduating, he plans to join the international humanitarian medical organization, Doctors Without Borders.

“It’s his way of giving back,” Heaton said.

At the end of the night, donor families were invited to come forward and pour colored sand into one of three clear glass decanters. The result was a beautiful mosaic of shades symbolic of the donors who poured into others through the gift of life.

One by one, donor names were called as their faces were featured on a big screen. A few family members took the mic to talk about how blessed they felt. Others emphasized the importance of telling friends and family you love them. Some shared advice they had been given. One young lady joked that people often misspelled her mother’s name.

“Just because life keeps going doesn’t mean we forget,” said Daniel Currie, who came to celebrate and remember his son’s life and gifts.

 

A Job Well Done

September 11, 2019: For Vincent Alderson, promoting organ donation was about more than just doing his job. It was about creating a lasting movement of goodwill.

Mission accomplished.

A memorial stands in the main hallway of Orange Park Medical Center due in large part to the efforts of our friend and co-worker who served as a hospital services coordinator at LifeQuest for six years. His name appears not once, but twice on The Vince Alderson
Donor Memorial Wall created in his namesake. Vince was also a tissue donor.

The Vincent Alderson Donor Memorial Wall at Orange Park Medical Center

“He was always a pleasure to work with because you knew that advocating for our patients and their families was his top priority,” said Sarah Miller, injury prevention coordinator at Orange Park Medical Center near Jacksonville. “I never met him in the hospital without a positive greeting and a smile.”

Miller worked closely with Vince on the hospital’s annual National Donate Life Month celebration to honor organ donors and raise awareness among staff and in the community. It was during this time that Vince told Miller he wanted donors honored in a more permanent way through a memorial at the hospital. They were researching design options when Vince passed away last June.

“He felt that families would be able to connect and keep the memory of their loved one alive through a memorial,” Miller said. “We felt very strongly about continuing with the construction and dedicating the wall in memory of Vince.”

Vince’s life and legacy are featured on the donor memorial wall.

Family, friends, and hospital staff gathered for an unveiling ceremony at the Vince Alderson Donor Memorial Wall in July. Brightly-lit and colorful, it features an interactive touch screen where visitors can learn more about the lives of these unsung heroes. Large panels on either side of the display list the names of donors who chose to share the gift of life.

Among those honored is Deputy Ben Zirbel, the Clay County deputy who died in a crash last August. According to information listed by the memorial, Zirbel’s gift helped at least five people, including a 70-year-old man who received his heart.

Vince and his megawatt smile are featured prominently on the display, making it difficult for visitors to walk by without notice. An unassuming family man and fitness buff, he never intended to be front and center. He chose instead to work behind-the-scenes at hospitals in Tallahassee and Jacksonville with the goal of securing an organ transplant for every patient in need. Vince was passionate about ensuring the memory of organ donors.

“What I will remember and treasure most about Vince is his great attitude and gratitude for what he did for a living,” said Kathleen Giery, director of donor program development for LifeQuest. “He loved this field and had unwavering respect for our donors and their families. Each time he talked about a case, rather than say “donor,” he would say “soul,” often predicated by “precious” or “young” or some other term of endearment.”

Most people want to know their life matters. Vince’s did. He made a difference by contributing to the lives of others. His deeds and his actions all made a difference. He simply did his job and inspired others. Nothing grandiose.

“Vince loved to be as involved in the process as possible and to the greatest extent that his job would allow,” said Danielle Balbis, executive director of LifeQuest. “He was so good at trouble-shooting when we were having issues in a hospital. If complications arose during a case, Vince was the one we wanted onsite.”

Hospital staff from Orange Park Medical Center at the dedication ceremony.

Vince’s life is proof that a remarkable legacy can be unintended. His passion and purpose were evident, and while his seat may be filled, his shoes never will.

“His calming effect was a welcome attribute for anxious families in our units burdened with heavy decisions,” Miller said. “Many staff and families have been excited to see Vince’s name on our wall above the new memorial along with his photos and story. He is missed but definitely not forgotten.”

“To our friend and colleague, who left us too young and too soon, rest in peace, Vince,” Giery said. “You are missed.”

Here’s to a life and a job well done.

 

This link will take you to a short video of the unveiling ceremony: https://www.facebook.com/LifeQuestFla/videos/428759977848621/

(By Kim Gilmore)